This opinion piece is informed by my personal experiences and poignant life story. My name is Ian Adams, and I have Retinitis Pigmentosa...

Johannesburg, South Africa – August 2024  – Spinal Muscular Atrophy (SMA) is a rare and devastating genetic disorder that affects the...

Danielle Ribeiro from Great.com interviewed Rare Diseases South Africa (RDSA) as part of their 'Great.com Talks With...' podcast. This...

It’s been 2 years since Rare Diseases South Africa (RDSA) launched a case in the Pretoria High Court on behalf of Zachary de Wet, at that...

RareX is a premier conference dedicated to the rare diseases community, bringing together a diverse group of healthcare professionals,...

Rare Diseases South Africa NPC (RDSA) has issued correspondence to the Honourable Minister of Health, with regards to the WHA Resolution

Bipolar disorder affects approximately 45 million people worldwide and is the sixth leading cause of disability in the world. In South...

As the seasons change, so does the risk of getting sick. With the influenza season on the horizon, it is time to think about protecting...

March is Endometriosis Awareness Month, a period dedicated to raising awareness about this complex medical condition that affects...

Remei was born a year ago with what initially looked like what the paediatrician described as “severe port wine stains”. As the...