On Friday, 21 March 2025 , South Africa observes both Human Rights Day and World Down Syndrome Day (WDSD) —a meaningful intersection...

Written by Michelle Norman, Umduduzi High Level Administrator and mother of 3. Brayden, grade 9, Jesse (2014 to 2017) and Gia (2020 to...

JOHANNESBURG, 27 February 2025  – The lives of millions of South Africans with a litany of rare diseases can be vastly improved, and even...

Johannesburg, 14th February 2025 - Rare Diseases South Africa is thrilled to share the news coming out the Jada Foundation this week. ...

Johannesburg, South Africa – 12 February 2025 Rare Diseases South Africa (RDSA) proudly welcomes the historic decision by the World...

07 Feb 2025 - Johannesburg It is with profound sadness and deep respect that we gather our thoughts to honor the remarkable life and...

7 February 2025 - Johannesburg Rare Diseases South Africa NPC (RDSA) announces the departure of Dr Helen Malherbe from her role as a...

This opinion piece is informed by my personal experiences and poignant life story. My name is Ian Adams, and I have Retinitis Pigmentosa...

Johannesburg, South Africa – August 2024  – Spinal Muscular Atrophy (SMA) is a rare and devastating genetic disorder that affects the...

Danielle Ribeiro from Great.com interviewed Rare Diseases South Africa (RDSA) as part of their 'Great.com Talks With...' podcast. This...