Circular 1 of 2024: Iron Deficiency Anaemia as a PMB condition
The Council for Medical Schemes (CMS) seeks to provide clarity regarding the funding of Iron Deficiency Anaemia as a Prescribed Minimum...
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Rare Diseases SA
Sep 22, 20233 min read
Call on United Nations Member States to make Universal Health Coverage a Reality for Rare Diseases.
21 September 2023, New York – A high-level meeting at the United Nations Headquarters, UN Member States gathered to accelerate progress...
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Rare Diseases SA
Aug 18, 20231 min read
#FIGHTFORZACH
August marks exactly a year since Rare Diseases South Africa issued the following press release in respect of our #FigthForZach. Despite...
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Rare Diseases SA
Aug 18, 20231 min read
Introducing The South African Rare Diseases Access Initiative
This month our director of research and epidemiology, Dr Helen Malherbe, published yet another correspondence article in the South...
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Hlumela Tshijila
Sep 22, 20221 min read
IRDiRC Forms Regulatory Science Committee to Address Regulatory Challenges in Rare Disease Research
IRDiRC, a global collaborative initiative with the vision to enable all people living with a rare disease to receive an accurate...
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Rare Diseases SA
Aug 26, 20221 min read
High Court Judgement in the Matter De Wet and RDSA vs MediHelp and CMS
The matter of Zachary de Wet was heard on Tuesday, 23 August, in an urgent application in the Pretoria High Court. The application made...
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Rare Diseases SA
Sep 7, 20215 min read
RECOGNISING RARE DISEASES – ACCESS AND ACTION
Mobilising stakeholders towards the formulation and eventual adoption of effective rare disease policy to transform patients' lives. The...
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