Call on United Nations Member States to make Universal Health Coverage a Reality for Rare Diseases.
21 September 2023, New York – A high-level meeting at the United Nations Headquarters, UN Member States gathered to accelerate progress...
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Rare Diseases SA
Aug 18, 20231 min read
#FIGHTFORZACH
August marks exactly a year since Rare Diseases South Africa issued the following press release in respect of our #FigthForZach. Despite...
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Hlumela Tshijila
Sep 22, 20221 min read
IRDiRC Forms Regulatory Science Committee to Address Regulatory Challenges in Rare Disease Research
IRDiRC, a global collaborative initiative with the vision to enable all people living with a rare disease to receive an accurate...
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Hlumela Tshijila
Mar 2, 20222 min read
World Down Syndrome Day - 21st March #InclusionsMeans...
Including all individuals with intellectual disabilities! March 21st is World Down Syndrome Day (WDSD), this global awareness day has...
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Hlumela Tshijila
Mar 1, 20224 min read
World Birth Defects Day
The 3rd March 2022 is World Birth Defects Day (WBDD) - a day when we recognise birth defects and their impact on the world. WBDD began as...
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Hlumela Tshijila
Feb 16, 20224 min read
Shining the Light on Rare Diseases in South Africa
This year for World Rare Disease Day (WRDD) on the 28 February 2022, Rare Diseases South Africa (RDSA) is redefining what it means to be...
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Hlumela Tshijila
Feb 15, 20223 min read
International Childhood Cancer Day (ICCD) – 15 February 2022
The 15th of February marks International Childhood Cancer Day (ICCD) and is used to continue to create a greater awareness and education...
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Rare Diseases SA
Sep 1, 20212 min read
September Childhood Cancer Awareness Month
Gold September is an annual campaign worldwide to raise awareness of childhood cancer. There are many advances in paediatric oncology,...
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Rare Diseases SA
Aug 23, 20212 min read
FOCUS ON IMPROVING QUALITY OF LIFE FOR THOSE IMPACTED BY RARE DISEASES
Symposium to address the way forward for rare diseases in South Africa The Rare Diseases Access Initiative (RDAI) in association with...
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Rare Diseases SA
Mar 7, 20194 min read
Rare Diseases SA champion private healthcare engagement to align with Universal Health Care
28th February 2019; Government’s National Health Insurance (NHI) scheme represents a substantial policy shift to restructure healthcare...
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Rare Diseases SA
Mar 7, 20193 min read
South Africa makes an impression at United Nations
To mark the occasion of Rare Disease Day 2019 the NGO Committee for Rare Diseases organised its second high-level event at the United...
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