The Brave Fight
A story of hope and healing. “I'm Andi*, an ambassador for a very rare condition called Trimethylaminuria (TMAU or Fish Odour Syndrome)....
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Rare Diseases SA
Oct 21, 20227 min read
Patient Profiles: Wrongful Diagnosis
Having been misdiagnosed, I would have never imagined how life with Pompe would turn out. My name is Michelle Marais and I am a Pompe...
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Rare Diseases SA
Oct 21, 20224 min read
Dad Diaries: Life with A Rare Disease Is Anything but Normal
As a dad, it was my absolute honour and privilege to be able to give my daughter one of my kidneys on June 22, 2021. This was exactly...
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Rare Diseases SA
Apr 4, 20224 min read
Raising Aidan Powered by The Hemp Cream
Authentic Parenting From Raising Aidan Microwave Cupcake Mix to The Hemp Cream, here’s an incredible story of a mother’s determination to...
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Rare Diseases SA
Apr 4, 20224 min read
Bailey’s Surprisingly (Un)Normal Normal Journey
The new normal with Bailey and the fun we have as a family is no different to other families Our little Bailey came into the world on 7...
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Rare Diseases SA
Apr 4, 20223 min read
Honouring Rare
Shining the light on the 1 in 15 people affected by rare diseases, including her own two rare warriors, Mrs. Isaacs tells her own...
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Nomsa Mtshali
Feb 16, 20224 min read
My life with Idiopathic Intracranial Hypertension
At only 18 years, in my matric year, I saw my dream of becoming a teacher slowly fading away - a dream I have had from a young age....
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