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Hlumela Tshijila
Jan 242 min read
Circular 1 of 2024: Iron Deficiency Anaemia as a PMB condition
The Council for Medical Schemes (CMS) seeks to provide clarity regarding the funding of Iron Deficiency Anaemia as a Prescribed Minimum...
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Hlumela Tshijila
Nov 8, 20231 min read
November Is Lung Cancer Awareness Month
Did you know that lung cancer is one of the most common types of cancer worldwide? It is also the leading cause of cancer-related deaths...
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Rare Diseases SA
Oct 13, 20232 min read
Celebrating Liesel…
Today is Phelan-McDermid day and we are celebrating Liesel . 5 year old Liesel was born in Pretoria, with Phelan-McDermid Syndrome, and...
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Hlumela Tshijila
Oct 5, 20236 min read
Switching and Monitoring Best Practice for Gaucher Disease
A consensus document Prepared by: International Working Group on Gaucher Disease (IWGGD) and International Gaucher Alliance (IGA) Issued...
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Rare Diseases SA
Oct 4, 20232 min read
Living with Gaucher disease as a toddler in South Africa
Two-year-old Eden Green was admitted to Red Cross Children’s Hospital in July 2020, where she was found to have an enlarged liver and...
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Rare Diseases SA
Sep 22, 20233 min read
Call on United Nations Member States to make Universal Health Coverage a Reality for Rare Diseases.
21 September 2023, New York – A high-level meeting at the United Nations Headquarters, UN Member States gathered to accelerate progress...
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Rare Diseases SA
Sep 19, 20234 min read
Orchard Therapeutics Announces Acceptance of Biologics License Application for OTL-200 in MLD.
Hope is on the horizon for patients impacted by metachromatic leukodystrophy.
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Rare Diseases SA
Sep 6, 20233 min read
Intellectual Property in Healthcare: the Patient Perspective
Intellectual Property in healthcare -what does it mean for patients?
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Rare Diseases SA
Aug 18, 20231 min read
Statement of Intent of The Rare Diseases Working Group
The Rare Disease Access Initiative (RDAI), outlined in our Statement of Intent addresses the pressing challenges surrounding rare disease...
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Rare Diseases SA
Aug 18, 20231 min read
RDAI - Advancing into Action
The Rare Disease Access Initiative (RDAI), a coalition of key stakeholders that includes participants from health industries and patient...
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