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Nomsa Mtshali
Feb 16, 20224 min read
My life with Idiopathic Intracranial Hypertension
At only 18 years, in my matric year, I saw my dream of becoming a teacher slowly fading away - a dream I have had from a young age....
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Hlumela Tshijila
Feb 16, 20224 min read
Shining the Light on Rare Diseases in South Africa
This year for World Rare Disease Day (WRDD) on the 28 February 2022, Rare Diseases South Africa (RDSA) is redefining what it means to be...
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Hlumela Tshijila
Feb 15, 20223 min read
International Childhood Cancer Day (ICCD) – 15 February 2022
The 15th of February marks International Childhood Cancer Day (ICCD) and is used to continue to create a greater awareness and education...
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Rare Diseases SA
Sep 7, 20215 min read
RECOGNISING RARE DISEASES – ACCESS AND ACTION
Mobilising stakeholders towards the formulation and eventual adoption of effective rare disease policy to transform patients' lives. The...
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Rare Diseases SA
Sep 1, 20212 min read
September Childhood Cancer Awareness Month
Gold September is an annual campaign worldwide to raise awareness of childhood cancer. There are many advances in paediatric oncology,...
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Rare Diseases SA
Aug 23, 20212 min read
FOCUS ON IMPROVING QUALITY OF LIFE FOR THOSE IMPACTED BY RARE DISEASES
Symposium to address the way forward for rare diseases in South Africa The Rare Diseases Access Initiative (RDAI) in association with...
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Rare Diseases SA
Jul 14, 20213 min read
Media Release: Availability of Medications / Panic-Buying
South Africa is currently the midst of an extraordinary time, with both logistics and access to healthcare services being severely...
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Rare Diseases SA
Jul 13, 20214 min read
How to Fundraise Like Your Life Depends On It...
We never plan to get sick… especially not with a rare condition or in need of a life-saving procedure that isn’t covered by medical aid,...
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Rare Diseases SA
Jun 25, 20212 min read
Understanding Vitiligo
25 June is World Vitiligo Day. This rare, progressive, auto-immune condition can affect anyone, at any age and whilst research is continuing
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Rare Diseases SA
Apr 29, 20213 min read
Lockdown Limbo: Overcoming the 'Blah' State of Mind
Anyone else feel like we're in Lockdown limbo? Life feels the most "normal-ish" is has since the Covid-19 pandemic struck and yet we're...
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