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Rare Diseases SA
Mar 31, 20213 min read
Burden of Rare Diseases in the USA almost $1 Trillion in 2019
The total economic burden for Rare Diseases in the United States of America for 2019 came to almost $1 Trillion! That is according to the...
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Rare Diseases SA
Mar 9, 20213 min read
Invisible Value Syndrome
It sounds a lot like a rare disease… but it’s neither a disease, nor is it rare. It’s an unfortunate mentality that exists surrounding...
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Rare Diseases SA
Jan 24, 20213 min read
Rare Lives Matter
“It doesn’t affect me, so I don’t have the capacity to deal with it right now” ~ All of us (at some point in our lives) We don’t believe...
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Rare Diseases SA
Jan 19, 20212 min read
Teaching With Alternative Communication - Nova School
If there is one thing people quickly learn about the Rare Diseases community, it's the resilience, tenacity and determination to make...
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Rare Diseases SA
Dec 15, 20203 min read
Healthcare Funding and Resources – SA’s ‘Other’ Pandemic
South Africa’s GDP allocation to healthcare research is under 0.3% - a far cry from where it should be.
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Rare Diseases SA
Dec 12, 20202 min read
Universal Health Care in South Africa - what do we need to strive for?
In September 2019, Member States of the United Nations, including South Africa, signed the most comprehensive and ambitious declaration...
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Rare Diseases SA
Dec 8, 20204 min read
5 Things Rare & Chronic Illness Patients hope you will understand better after Covid-19
"State of Emergency" is a permanent way of life for rare and chronically ill patients.
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Rare Diseases SA
Feb 5, 20204 min read
Advocacy – what is that?
WHAT IS ADVOCACY? Whilst we are spending the month of Feb re-framing what the world thinks about Rare, we thought we spend just one day...
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Rare Diseases SA
Aug 14, 20191 min read
Rare Diseases SA responds to signing of Presidential Health Compact 25 July 2019 – Pretoria
Rare Diseases South Africa (RDSA) has released the statement below in response to the signing of the Presidential Health Compact and in...
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Rare Diseases SA
Aug 14, 20191 min read
Girl with Rare Condition makes Teddy Bears to hide IV Bags for Paediatric patients
A 12-year-old American girl has come up with an ingenious product to ease the anxieties of paediatric patients just like her. Ella Casano...
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