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Rare Diseases SA
Aug 14, 20192 min read
Be Brave Box – What to Pack
If you or your company are looking for an initiative to support this Mandela Day (18 July 2019), then consider the Be Brave Box project...
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Rare Diseases SA
Aug 14, 20193 min read
My Fireman’s journey with Fanconi Anemia from birth. By Gidion’s mom
My son Gidion was diagnosed with #FanconiAnemia (#FA) at birth, a very rare genetic disorder causing fatal bone marrow failure. He came...
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Rare Diseases SA
Aug 14, 20193 min read
Daily life is a struggle but we couldn’t imagine not having Connor in our lives. #Dravet Syndrome
On the 21st of January 2011, our beautiful little boy Connor was born. He was perfect in every way and had no issues what so ever. Connor...
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Rare Diseases SA
Jul 28, 20194 min read
What NOT to say to a grieving mother… Words by Tuschka Reynders
I thought long and hard before I posted this, since I don’t want to offend anyone. I know in my heart everything said to me is said with...
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Rare Diseases SA
Jul 28, 20192 min read
Actress Selma Blaire keeps fans updated on her MS Battle
47 year old actress, Selma Blair is actively updating her followers on the latest in her battle with Multiple Sclerosis after recently...
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Rare Diseases SA
Jul 28, 20193 min read
HOW TO CHANGE LIVES… BY RIDING YOUR BIKE
If you’ve always threatened to take part in the 947 Cycle Challenge but have been intimidated by the distance… then this year is your...
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Rare Diseases SA
Jul 23, 20192 min read
The Cost of Providing “Invisible Services”
Words: Kelly du Plessis Another Mandela Day has gone, charities around the country have had an injection of hope that help is on the way....
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Rare Diseases SA
Jul 19, 20193 min read
Top 10 Things to Pack in your Hospital Bag
Unlike those who pop in to hospitals for routine procedures such as tonsil removal, wisdom teeth extraction or grommets and are released...
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Rare Diseases SA
Jul 17, 20191 min read
Disability Emoji’s Released on World Emoji Day
Today is World Emoji Day and in an attempt to better represent those with disabilities, Apple and Google have shared sneak peaks into a...
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Rare Diseases SA
Jul 14, 20191 min read
Dad turns Bed Sheets into Boardgames to Fight Boredom
No one will understand boredom more than a child hospitalised for extended periods of time. There are only so many movies to watch and...
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