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Rare Diseases SA
Apr 17, 20193 min read
6.9 million People worldwide have a bleeding disorder, 75 % of them do not know it!
WORLD HEMOPHILIA DAY 17th April 2019: “Reach OUT : The FIRST STEP to CARE” Lets Change the World for ONE PERSON at a time and help reduce...
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Rare Diseases SA
Apr 17, 20193 min read
2019 DECLARATION OF CHILDREN’S RIGHT TO PALLIATIVE CARE
PatchSA are calling on all South African’s to sign the Declaration, to show support for the right of every child in South Africa to...
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Rare Diseases SA
Apr 9, 20192 min read
HIGH LEVEL NATIONAL STAKEHOLDER MEETING FOR CHILDREN WITH SERIOUS ILLNESS
On 18 March, a high level national stakeholder meeting for children with serious illness took place in Johannesburg. Rare Diseases SA was...
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Rare Diseases SA
Mar 7, 20194 min read
Rare Diseases SA champion private healthcare engagement to align with Universal Health Care
28th February 2019; Government’s National Health Insurance (NHI) scheme represents a substantial policy shift to restructure healthcare...
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Rare Diseases SA
Mar 7, 20193 min read
South Africa makes an impression at United Nations
To mark the occasion of Rare Disease Day 2019 the NGO Committee for Rare Diseases organised its second high-level event at the United...
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Rare Diseases SA
Mar 7, 20191 min read
Rare Diseases in South Africa: Bridging the Gap for Inclusive Healthcare
Rare diseases are an area of healthcare which has been neglected in the past, predominantly due to the high cost of drug research and the...
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Rare Diseases SA
Feb 26, 20192 min read
The Inspiration Effect
If you inspire people, then they inspire other people and then it just keeps going on so that it just helps everybody. These are the...
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Rare Diseases SA
Feb 15, 20193 min read
A Mother’s Love and Dedication
Mc van der Merwe was born on 9 December 2014, after we had prayed for him for many years. He was such a beautiful baby boy, he did...
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Rare Diseases SA
Feb 7, 20192 min read
Denim Walk to Raise Funds and Awareness for Rare and Genetic Diseases
Rare Diseases South Africa (RDSA), in conjunction with the Genetic Alliance South Africa (GA-SA), are supporting those affected by rare...
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Rare Diseases SA
Feb 3, 20194 min read
What I hate about what we do…
There are aspects to working or running a charity that people do not realize. I would like to explain some of the things that we deal...
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