top of page
blog
Search
Patient Profiles: Wrongful Diagnosis
Having been misdiagnosed, I would have never imagined how life with Pompe would turn out. My name is Michelle Marais and I am a Pompe...
Rare Diseases SA
Oct 21, 20227 min read
266 views
0 comments
Dad Diaries: Life with A Rare Disease Is Anything but Normal
As a dad, it was my absolute honour and privilege to be able to give my daughter one of my kidneys on June 22, 2021. This was exactly...
Rare Diseases SA
Oct 21, 20224 min read
220 views
0 comments
bottom of page