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for a

better 

tomorrow

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#1in15 South Africans are affected by rare diseases

That's the equivalent of 1 player in every rugby team! 

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Whilst uniquely they may be rare, with more than 7000 known rare diseases, collectively they are more common than anticipated.

 

At Rare Diseases South Africa, we’re doing our best to support those 4.2 million South Africans who have been, or will be, diagnosed with a rare disease or congenital disorder in their lifetime. 

 

Our mission is to ensure a better tomorrow for all those impacted.

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the lives

 we touch

Rare Diseases South Africa is a registered non-profit organisation (NPO 120-991) advocating for a better tomorrow for the #1in15 South Africans impacted by rare diseases and congenital disorders,  including greater recognition, support, improved health service and better overall quality of life.

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community

become

part of our

Whether you're a patient, carer, family member, healthcare professional or even an athlete willing to use your mobility for the benefit of those without your voice counts and your input matters.

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Get involved and help us to leave a legacy... a better tomorrow.

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giving is 
good medicine

Support Rare Diseases SA, in any way you are able to, and invest in a better tomorrow for the 1 in 15 South Africans that are, or who will be, impacted by a rare disease or congenital disorder at some point in their lives.

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Rare Diseases South Africa is a registered Non-Profit Organisation (NPO 120-991) and relies on donations and contributions from the public to enable us to continue our work in advocacy and research.

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Back the team who supports the #1in15.

upcoming events

  • RARE DISEASE DAY—FAMILY DAY
    RARE DISEASE DAY—FAMILY DAY
    08 Mar 2025, 12:00 – 17:00
    Walkhaven Dog Park, Plot 77, Walkhaven farm, M5, Zwartkop, Johannesburg, 1748, South Africa
    Join us for Rare Disease Day—Family Day, a special event dedicated to raising awareness, and celebrating the strength of people living with rare diseases. This day is all about bringing families together and creating lasting memories in a supportive and inclusive environment.
  • #Run4Rare TTOM 2025
    #Run4Rare TTOM 2025
    05 Apr 2025, 05:00 – 17:00
    Cape Town, Cape Town, South Africa
    Total Sports Two Oceans Marathon 2025 is an opportunity to use your mobility to benefit others - our rare diseases community! Purchase your entries today to take part in the worlds most beautiful marathon! PLEASE NOTE THAT ENTRIES HAVE CLOSED.

let our stories inspire you

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our corporate members

be the first to know

RDSA will be reimplementing our monthly newsletters to update you on our work and the progress we're making within the rare disease and congenital disorder landscape in South Africa.

 

We have four newsletter which will contain unique information based on our four pillars: Community Engagement, Advocacy, Patient Navigation and Research.

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for a better tomorrow

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Contact us

Telephone +27 10 594 3844
Hotline 072 476 7552
hello@rarediseases.co.za

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Physical Address

The Station, 63 Peter Place, Bryanston, Sandton, 2021

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NPO: 120-991  NPC: 2016/071131/08  PBO: 930060119

© 2025  Rare Diseases South Africa NPC | Rights reserved

RDSA Privacy Policy 

Rare Diseases South Africa

NPO 120-991

The Station, 63 Peter Place, Bryanston, Sandton, 2021

(“the Organisation”)

 

MANUAL PREPARED IN ACCORDANCE WITH SECTION 51 OF THE PROMOTION OF ACCESS TO INFORMATION ACT NO. 2 OF 2000

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