7 February 2025 - Johannesburg
Rare Diseases South Africa NPC (RDSA) announces the departure of Dr Helen Malherbe from her role as a director for Research & Epidemiology. Dr. Malherbe has played a crucial role in driving the organization’s research agenda, significantly contributing to advancements that benefit the rare disease community.
While stepping down from her directorship, Dr Malherbe will continue to collaborate with RDSA in a research capacity, contributing her vast expertise and unwavering dedication to advancing knowledge and solutions for the rare disease community.
"Dr. Malherbe's contribution as a director has been invaluable," said Kelly du Plessis, CEO at RDSA. "We are deeply grateful for her leadership and commitment over the years. Her continued involvement in research will ensure that her influence and passion for improving the lives of patients remain part of RDSA's journey."
In light of Dr. Malherbe’s departure and the continued strained economic climate, RDSA has made the strategic decision to cancel its internal research pillar. This change will allow the organization to focus its capacity and resources toward patient support and advocacy, which remain critical to its mission.
Despite this shift, RDSA remains committed to fostering meaningful research by strengthening partnerships with external stakeholders across the country, including their formal partnership with North-West University. These collaborations will ensure that vital research into rare diseases continues to thrive in South Africa.
During her tenure, Dr. Malherbe was instrumental in shaping key initiatives that empowered patients, expanded research efforts, and strengthened community engagement.
Dr. Malherbe “My time with RDSA has been immensely fruitful. I look forward to continuing my academic work in the rare disease and congenital disorders sector from an academic standpoint and will continue to advocate for the patient perspective and patient-centricity in my ongoing research, under the auspices of North-West University”.
RDSA remains steadfast in its mission and looks forward to ongoing collaboration with Dr. Malherbe as it continues to advocate for access to treatment, care, and research for those living with rare conditions.
Ends
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Issued by:
Kelly du Plessis – CEO
Rare Diseases South Africa NPC
Info@rarediseases.co.za / 010 594 3844
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