RDSA has various programmes and projects at any given time, all of which align with our objectives of improved navigation, advocacy and engagement.

Funds raised are used to support these objectives in a variety of ways, such as:

  • Provision of services for rare disease patients
  • Implementation of referral pathways for patients
  • Maintenance of patient support groups
  • Assistance with patient advocacy and case management
  • Legislation and Policy Review
  • Development of patient educational resources
  • Monitoring of service delivery
  • Awareness campaigns