The Rare Disease Access Initiative (RDAI), a coalition of key stakeholders that includes participants from health industries and patient advocacy groups, have been the primary driving force behind raising awareness and promoting an environment which is favourable for people living with a rare disease (PLWRD).
The RDAI recently hosted their second Stakeholder Symposium, an open dialogue regarding actionable solutions to the challenges of access to healthcare that are experienced by approximately 3.7 million PLWRD in South Africa. This forum was chaired by Dr Helen Malherbe, Director of Research at Rare Diseases South Africa (RDSA).
Read the full Workshop Report about our progress on the path to improved healthcare services for PLWRD.
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