In 2006 I knew there was something wrong, but I didn’t know what it was.
By the end of 2007, I was not coping and exhausted. My eyes were drooping and
my speech was slurred. I couldn’t smile and couldn’t climb a fight of steps independently. Like the rest of my Occupational Therapy class, I was sleep deprived and tired. Even though I was presenting with Myasthenia Gravis (MG) symptoms they were overlooked. Two weeks before my final exams I was diagnosed with MG. I had no
clue what it was or where it came from but I was so thankful that there was hope to
get better! Loaded with medication to help me over the exam period I left the hospital feeling I could overcome this! Flash forward to 2017 and I smile at my naivety after being diagnosed. The last decade of my life has been filled with numerous hospital admissions, surgeries, tears and handfuls of medication. I can honestly say that when I embarked upon this life journey, I was not prepared. There were three main things that have kept me going and helped me along this winding path.
1)Support from family, friends and fellow MG warriors From being a shoulder to cry on to driving me around and doing chore and errands I could not have survived if it was not for their support. I have only connected with other MG Warriors over the last two years and have started to blog to share my experiences. 2)My Spirituality Having a higher power and a purpose in life helps get me through the tough times. This also greatly influences my way of thinking and keeps me positive. 3)The right medical support and advice I have been very fortunate to find the right medical team that both fight for my rights and to see me healthy. I have greatly improved over the last year thanks to this combination and went into medical remission. Another life dream has then been able to come true and my husband and I have fallen pregnant. While I know they may be tough times ahead, I will keep using my three keys above to help me through.
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