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Feb 142 min read
Great news from the Jada Foundation
Johannesburg, 14th February 2025 - Rare Diseases South Africa is thrilled to share the news coming out the Jada Foundation this week. ...
Feb 122 min read
Rare Diseases South Africa Welcomes WHO Executive Board’s Historic Recommendation on Rare Diseases
Johannesburg, South Africa – 12 February 2025 Rare Diseases South Africa (RDSA) proudly welcomes the historic decision by the World...
Feb 72 min read
In Memory of Dr Mehnaaz Ally
07 Feb 2025 - Johannesburg It is with profound sadness and deep respect that we gather our thoughts to honor the remarkable life and...
Feb 72 min read
Dr. Helen Malherbe Steps Down as Director of Rare Diseases South Africa NPC
7 February 2025 - Johannesburg Rare Diseases South Africa NPC (RDSA) announces the departure of Dr Helen Malherbe from her role as a...
Nov 13, 20245 min read
Breaking Down Barriers: Creating a More Inclusive World for All
This opinion piece is informed by my personal experiences and poignant life story. My name is Ian Adams, and I have Retinitis Pigmentosa...
Aug 29, 20245 min read
The Cost of a Life: A Family's Fight for Their Son's Future Amid Medical Scheme Dispute—Raising Awareness for SMA
Johannesburg, South Africa – August 2024  – Spinal Muscular Atrophy (SMA) is a rare and devastating genetic disorder that affects the...
Aug 27, 20243 min read
Great.com interviews Rare Diseases South Africa About Shinning Light on All Things Rare
Danielle Ribeiro from Great.com interviewed Rare Diseases South Africa (RDSA) as part of their 'Great.com Talks With...' podcast. This...
Aug 27, 20244 min read
Update on the #FightForZach
It’s been 2 years since Rare Diseases South Africa (RDSA) launched a case in the Pretoria High Court on behalf of Zachary de Wet, at that...
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