Breaking Down Barriers: Creating a More Inclusive World for All
This opinion piece is informed by my personal experiences and poignant life story. My name is Ian Adams, and I have Retinitis Pigmentosa...
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Aug 295 min read
The Cost of a Life: A Family's Fight for Their Son's Future Amid Medical Scheme Dispute—Raising Awareness for SMA
Johannesburg, South Africa – August 2024 – Spinal Muscular Atrophy (SMA) is a rare and devastating genetic disorder that affects the...
Aug 273 min read
Great.com interviews Rare Diseases South Africa About Shinning Light on All Things Rare
Danielle Ribeiro from Great.com interviewed Rare Diseases South Africa (RDSA) as part of their 'Great.com Talks With...' podcast. This...
Aug 274 min read
Update on the #FightForZach
It’s been 2 years since Rare Diseases South Africa (RDSA) launched a case in the Pretoria High Court on behalf of Zachary de Wet, at that...
Aug 1811 min read
Rare-X in Review: Understanding the legal framework for the Rare Disease community in South Africa
RareX is a premier conference dedicated to the rare diseases community, bringing together a diverse group of healthcare professionals,...
Aug 83 min read
Request to Minister of Health regarding WHA Resolution on Rare Diseases
Rare Diseases South Africa NPC (RDSA) has issued correspondence to the Honourable Minister of Health, with regards to the WHA Resolution
Jun 202 min read
CMScript: Focus on Bipolar Disorder
Bipolar disorder affects approximately 45 million people worldwide and is the sixth leading cause of disability in the world. In South...
May 223 min read
Get The Flu Vaccine Ahead Of The Influenza Season
As the seasons change, so does the risk of getting sick. With the influenza season on the horizon, it is time to think about protecting...
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