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Rare Disease Day 2023
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Rare Disease Day 2023
00:31
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Letsatsi la Mafu asatlwaelehang la 2023
00:40
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Usuku lwezifo ezingavamile 2023
00:41
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Patient Stories
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#RareAware 2022 - Angelina & Janet Grab
01:39
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#RareAware 2022 - Victor Family
03:56
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#RareAware 2022 - Nico Nel
01:45
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RDSA Share Your Rare - Janice Strydom Interview
01:43
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Rare Aware
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#RareAware 2022 - Kelly Du Plessis Social Call To Action Video
00:49
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#lightupforrare video
30:37
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#RareAware 2022 - Nico Nel
01:45
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#RareAware 2022 - Roxy Burger
00:53
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Webinars
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Understanding Clinical Trials

Understanding Clinical Trials

01:12:43
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Understanding Section 21 and off-label products

Understanding Section 21 and off-label products

01:06:40
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Getting to know ITP & MF

Getting to know ITP & MF

01:04:20
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Getting Social - Taking your support group to new digital heights

Getting Social - Taking your support group to new digital heights

01:00:17
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Policy Development
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Rare Diseases Access Initiative Symposium 2021

Rare Diseases Access Initiative Symposium 2021

02:45:08
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Support Groups Member Content
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Getting Social - Taking your support group to new digital heights

Getting Social - Taking your support group to new digital heights

01:00:17
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Support Groups: Collating Feedback & Turning It Into Action

Support Groups: Collating Feedback & Turning It Into Action

43:01
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Going Virtual with Patient and Caregiver Support Meetings

Going Virtual with Patient and Caregiver Support Meetings

59:47
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Hosting a Successful Webinar

Hosting a Successful Webinar

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59:46

Researchers and Academics
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Genomic Research to Elucidate the Genetics of Rare diseases with Professor Eric Vilain

Genomic Research to Elucidate the Genetics of Rare diseases with Professor Eric Vilain

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01:01:44
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